How should public organizations work and protect their rights to quality medical care? All-Russian Congress of Patients
Friends, at the end of November I visited the IX All-Russian Congress of Patients. Now, having digested all the information, I am ready to share my impressions and useful materials! Useful for those who are interested in how to improve the work of the patient organization, protect drug rights and interact with insurance companies.
Living very far from the capital of our country, I, like no one else, understand how much we are deprived of in Primorsky Krai. We are trying to get through to Moscow officials, being 9,000 kilometers away and a seven-hour time difference. Therefore, when there is an opportunity to be at the epicenter of events that improve the lives of patients in our country, then such a gift of fate should not be missed. You have to leave your two sweet little men at home unattended and go.
At the end of November, I was unrealistically lucky to receive an invitation to the IX All-Russian Congress of Patients. It took place in Moscow, lasted 3 days and was very eventful. Just imagine that more than 500 delegates (180 of them are activists of the patient community) from 73 regions of Russia gathered in one place.
On the first day , Minister of Health Veronika Igorevna Skvortsova spoke to the leaders of patient organizations. She shared her plans for the future regarding healthcare improvements in the regions. She also told what work is already underway and what technologies are being used to free doctors from bureaucratic traps that reduce the quality of medical care and make life difficult for patients.
The most important thing is the possibility of personal contact with high-ranking officials at such events. I was able to hand over personally to the Minister of Health a letter outlining all the problems associated with diabetes in Primorsky Krai.
The next day was filled with experience exchange activities. At panel discussions, heads of patient organizations and co -chairs of the All- Russian The Patients’ Union discussed possible solutions to numerous problems. All I had to do was absorb the knowledge, bring it to our region for application.
On the third day of the congress, trainings and educational programs were held. I understand that, unfortunately, the knowledge that I received at the event could not be obtained in ordinary life. Not in all regions, non-profit organizations (NPOs) operate at the required level. Often there is simply not enough knowledge and experience. That is why it is very important for novice activists to attend various thematic events and be in constant contact with already experienced NGO leaders.